Benjamin Piwko

My View


Thoughts that carry me.

Here I gather what I think about life, about understanding and about being together.

Back to the homepage

What I reflect on


It is not deafness that isolates. It is the silence of others.

Helen Keller was Deaf and blind. She said a sentence that still echoes today. Blindness cuts us off from things, deafness cuts us off from people.

Read that again. From people. Not from a book, not from a picture. From people. In the middle of a full room, and still alone. That is the deepest loneliness there is.

But here is what almost everyone overlooks. This loneliness does not come from the deaf ear. It comes from a world that does not speak our language. Helen Keller grew up far from sign language and far from the community of other Deaf people. It was not deafness that isolated her. It was the silence of others.

Give us the language, and the wall falls. With sign language a Deaf person is not left outside. They are right in the middle. Not less human, just at home in another language.

The separation is not our fate. It is a choice. Made new every day. By you.

Inclusion promised. Integration lived.

We hang the word inclusion on the wall. We print it in the brochure. And then the opposite happens. What gets lived is integration. That is not the same thing. It is almost the opposite.

Integration means adapt. Become like us. Function in our world. The hearing world stays the standard, and we are supposed to squeeze ourselves into it. Whoever cannot keep up falls through the grid. Not because they can do too little, but because the grid was never built for them.

It costs strength. Every day. It is the constant effort to belong without ever truly belonging. You strain, you smile, you nod, and inside you know, I am missing half of it. That is not a small discomfort. It gnaws. It wears down the soul.

Real inclusion would be something else. It would mean that sign language is worth just as much from the very start. That an interpreter is simply there before you have to beg for one. That the surroundings change, not the person. Exactly that does not happen. The barriers stay, and we are supposed to overcome them alone.

And then people wonder why so many Deaf people become lonely. Why the fear comes. Why the heaviness stays. That is no accident. It is the bill for a world that wants to repair us instead of opening up. Diversity gets treated like a fault that has to be removed. But the person is not the fault. The fault is a world built for only half of everyone.

Here is the point everyone has to understand. Fairness does not mean that everyone does the same amount. We cannot become hearing. It is not possible, no matter how hard we try. But hearing people can learn our language. They can book the interpreter. They can set the light right, speak one at a time, bring us in. The effort belongs where it can work.

Whoever does not want that should at least stop using the word inclusion. A word on the wall heals no one. It makes it worse, because it pretends a promise that no one keeps.

We do not want pity. We want justice.

What has to change.

If this system is going to become fair, the view has to turn around. The person does not have to adapt. Society has to change. That is the whole point. As long as we do not grasp that, we are only talking around it.

Let us start with respect. Sign language is not a stopgap. It is a full language, and it is identity. No one has the right to force spoken language on a Deaf person and make their language small. Schools have to teach in sign language and written language from the very start. Fluently, as a matter of course, not as an exception. And we do not need pity and we do not need a cure. We need to be seen as what we are. A linguistic minority with its own culture. At eye level.

Then fairness. An interpreter must not be a fight against forms. Neither must subtitles. The system has to provide them on its own, before anyone has to beg. Public offices, media, the emergency line, the workplace, all of it has to be visual and accessible by default. From the ground up, not added on later and halfheartedly. Fairness means a Deaf person has the same chances in education and work as everyone else. Not slowed down because the communication is missing. When talent fails at a missing bridge, that is not a personal failure. It is the failure of society.

And now the core. How do you free a soul that has felt trapped its whole life. By giving Deaf people spaces where they are not the exception. Contact with other Deaf people is not a nice extra. It protects the soul. It gives the feeling that many feel for the first time. I am right, exactly as I am. By having hearing people learn. The Deaf person does not have to learn to hear. The hearing world has to learn how understanding works without sound.

We need therapists who are Deaf themselves or who truly know our language and our culture. Now stop for a moment. In all of Germany, officially, 39 psychotherapists have any knowledge of sign language at all. 39. Only 21 practices can really sign directly. And the ones who can truly do it, with real knowledge of our culture, are in my experience maybe six. Six. For up to one hundred thousand people.

Imagine that in your world. Eighty million hearing people. And for all of you there were six therapists who speak your language. Six in an entire country. You would not believe it. You would call it a scandal. For us it is everyday life.

There is not even a training path for it. You would first have to study for years and then learn sign language for years more. Almost no one takes that road. So a Deaf person is often left alone with their pain. Or they have to hand the hardest thing in their life to a stranger, because no one is there who understands them directly. Imagine having to dictate your deepest wound to a stranger. A wound caused by exclusion cannot be healed in a language that excludes again.

This is not too much to ask. It is the bare minimum. It is doable. It is not the ability that is missing. It is the will.

We do not want pity. We want the world to move.

Anger is a warning signal, not an attack.

Anger has a bad reputation. Yet it is one of the most important feelings we have. It is a warning signal. It speaks up when a boundary is crossed. When someone is overlooked. When a need is ignored once again. Anger does not say, you are bad. Anger says, something here is wrong.

And now the part almost no one wants to see. My anger does not come from nowhere. It does not come only from some distant society. It comes from close by. From people who actually mean well. Parents, family, friends, colleagues. People who decide about me instead of with me. Who speak for me without asking me. Who arrange things and tell me afterward, we already sorted it out for you.

That is the point. A grown Deaf adult often gets treated like a child. People do not ask, they decide. They talk about me, not with me. They call it care, but it takes the decision out of my hands. Every time a small sting. You do not quite count. You will not understand anyway. We will do it for you.

Imagine someone running your life over your head. Your appointments, your money, your words. And when you push back, they say, do not be so difficult. How long would you stay calm? That is exactly what happens to us, again and again. And then people are surprised by the anger.

So my anger is not the beginning. It is the echo. The echo of a thousand times I was not asked. Suppressing it does not help. Suppressed anger makes you ill over time. It turns into fear, into pressure, into exhaustion. It is better to take it seriously, in me and in you.

It is like with sharks. A shark is not a monster. But fear and ignorance turn it into one. People see the teeth, not the animal. They stamp it as dangerous without ever having understood it. That is exactly what happens to us and to our anger. People see the loud moment, not the human behind it and not the reason.

What I need is not pity and not a lecture. I need to be asked. To be spoken with, not spoken about. To be allowed to decide, even wrongly sometimes, like any other adult. Ask me. Talk it through with me. Then the anger is not needed in the first place.

Why we are sometimes seen as monsters

Sometimes we get loud. Not because we are bad, but because we were overlooked for a long time.

Often it starts very calmly. A Deaf person wants to explain something important, so that no false picture forms. He asks once, he asks many times. Please understand me. Please let me finish. Let me explain what it is about and how it feels for us.

But instead of asking, a lid often comes. It is pressed onto our head like a pot lid, so that nothing can come out anymore. You only talk about problems, they say. You are difficult. You are the problem. And when even that is ignored, the fear grows. Please see me. Give me the chance to explain.

Imagine explaining yourself again and again, and still others decide about you. You are overlooked, misunderstood, not taken seriously, day after day. At some point it builds up. And when it finally breaks out, most people only see that one loud moment. They do not see the many quiet ones before, when we stayed patient.

There is something else that often gets missed. Our language lives through facial expression, gaze and body. What is clear and completely normal for us can quickly look fierce or angry to someone who does not know sign language. So clear communication suddenly looks like aggression in foreign eyes.

And then the convenient thing happens. People call us difficult, evil, a monster. Because it is easier to declare a person the problem than to ask what brought them there. Whoever calls another a monster no longer has to look closely.

And when we then walk away to protect ourselves and find calm alone, that is not right either. Then they say, you run away like a child. If we stay, we are too loud. If we leave, we are cowards. Whatever we do, it gets turned against us.

But the anger is not the beginning. It is the echo. It is what remains when a person has been overlooked for too long.

Think of a dog that was locked up for a long time, beaten and left alone again and again in its fear. If it finally snaps, is it evil? Or is it only showing what was done to it? No one would blame the animal. Everyone would ask who hurt it. With people, we often judge first and ask later.

That is why the solution is not louder opposition, but togetherness. Understanding, patience and love in the simplest sense, which means seeing the other person as they are. Whoever feels understood and safe does not need to panic. Where there is understanding, no anger arises. Not against each other, but with each other. It is that simple and that hard.

What love as a language means

You do not say love, you show it. And like every language, you have to learn it, with patience. Part of that is understanding the whole person. Their past, their childhood, their wounds. Whoever knows this understands why a person reacts the way they do. You then see not only the storm, but also where it comes from.

Love is being there, no matter how hard it gets. Not against each other, but on the same side. You learn how to deal with one another and how to read the other person’s language. That is work, but it is the most beautiful work.

When someone stays and truly wants to understand you, you feel safe. Safety takes the fear away. Where there is understanding, no one needs to panic anymore.

And then the sun comes, and it stays longer. Because trust grows roots. Every storm that two people weather together makes the bond stronger and the calm afterwards longer. The next storm comes more quietly and passes faster. With every time you get through it together, it loses a piece of its power.

Why real lightness does not come from adapting

Many people wish that living together were easy. The wish is beautiful and real. But the lightness some people mean is a dream. They think it works without effort, if only everyone is the same. That is not how it comes. Real lightness stands at the end of the road, not at the beginning. First comes the work of understanding, then it becomes light.

Whoever wants lightness instantly and for free is asking one side to disappear. That is not lightness, that is only quiet for some, paid for by the others. Because difference does not go away when you pretend. You only hide it, and the strain remains.

When we are asked to behave like hearing people, to play something we are not, that is a quiet violence. Not with the hand, but it hurts all the same. A person then has to hide every minute, play a role, conceal their language, keep their needs silent. That is exhausting to the point of collapse.

At its core it says something terrible. The way you are is not acceptable. Only if you erase yourself do you belong. That hits a person deeper than any blow, because it attacks their dignity and their identity. The wounds cannot be seen, but they are there.

The opposite is simple and hard at the same time. You may be who you are. We move toward each other, each learning from the other. Not becoming the same, but being different and together anyway. That is where real lightness grows.

Why fairness is more than equality

Meeting in the middle sounds fair, but it does not work, because both sides cannot go equally far. A Deaf person cannot learn to hear. Hearing is not a skill you practice, it is a sense. That door is closed. A hearing person, on the other hand, can learn sign language. That door is open.

If you ask both to go equally far, you ask one side for something possible and the other for something impossible. That is not fair. This is why equality is not the right thing here, but fairness. Equality means treating everyone the same. Fairness means each person gets what they need to truly take part.

When the start is unequal, equal treatment only keeps the inequality in place. Fairness puts the effort where it can work. So the hearing side comes a little further toward us. It learns our language, provides interpreters, light and attention. That is not an advantage for us. It only balances an unequal start, so that in the end participation is truly equal for everyone.

That is the core of Inclusion plus. Not fifty fifty, but fair.

Why everyday life often costs us more energy

Many people do not notice how much energy a normal day costs us. To follow a conversation, our mind works without a break. We read faces, expression and body, we combine, we fill the gaps. This work never stops. Hearing people catch a lot in passing. We have to earn it.

In loud rooms or large groups it gets even harder. Where hearing people filter out the important things by themselves, we have to fight through a chaos. Often it is barely possible. That drains us.

Whoever communicates through the eyes can never switch off. A hearing person can look away and still follow. We cannot. If we look away for a moment, the thread is gone. You feel this constant tension in every bone by evening.

And there is something bigger. The world is built by hearing people for hearing people. They make the rules, and accessibility is often treated as an extra, not as a given. Hearing people do not have to strain to belong. This head start gives them energy every day that we are missing.

So we have to try twice as hard everywhere, just to start on the same level. At work we do not want to show weakness, so that no one thinks being Deaf means being incapable. We organise our own communication, ask for notes, request interpreters. And often we are expected to adapt, instead of the world removing the barriers.

In the family it is similar. At gatherings many people talk at once, laugh about something and quickly change the subject. We strain to hold the thread, or in the end we sit there alone. Often it is up to us to keep the contact, because only a few know our language.

And in daily life, at the doctor, at the authorities, while shopping, we have to explain our rights again and again and ask for understanding. That costs energy every day. That is why we are often more tired in the evening than others realise. It is not weakness. It is the bill for a world that is not yet made for everyone.

What a call for help really is

Getting loud is often not an attack, but a call for help. It is the same plea as before, only louder, because the quiet plea went unanswered. Whoever shouts has whispered for a long time first.

And why is it the very worst when this call is covered up, despised, ignored and pushed away? Because a call for help is the last bridge. It means: I still hope. I still believe that someone will come. It takes courage, and it takes a last bit of trust. When you then despise this call, you do not only say no to help. You punish the person for having hoped at all. You confirm their deepest fear: I am truly alone.

There is a bitter injustice in this. The more desperate the call, the louder it gets. And the louder it gets, the faster it is called aggressive and pushed away. So the very person who needs help most is rejected the hardest. It is like slapping away the hand that reaches up out of the water.

And the worst comes afterwards. Whoever has once felt that their call brings only contempt will at some point stop calling. They grow quiet and withdraw. This silence is more dangerous than any storm, because it means: I have stopped believing that anyone will come. To give up on a person is the end of hope.

But this is exactly where the beautiful part lies, and that matters. If just one single person recognizes the call for what it is and simply stays, everything can turn. One single answered plea gives back the hope that was almost gone. That is why understanding is not a nice extra. It can save a person.

Thoughts


In my words.

You are afraid of silence. For me it is not a lack, but my home.

Benjamin Piwko

The greatest disability is not in the body. It sits in the minds of those who believe they have none.

Benjamin Piwko

The loudest people often have the least to say. The quietest have often understood the most.

Benjamin Piwko

Those who are truly strong do not need to prove it. That is left to those who are not.

Benjamin Piwko

A person does not grow through their successes, but through the days they keep going when no one is applauding.

Benjamin Piwko

Diversity is not a problem to be solved. Diversity is the solution.

Benjamin Piwko

People often believe a hearing person about me faster than they believe me. Yet I am the only one who truly knows what it is like to be me.

Benjamin Piwko

A judgment about another person is often a self-portrait. Whoever speaks badly of others reveals, above all, themselves.

Benjamin Piwko

Love is not an object. It is a language. You speak it with your hands, with your eyes and with what you do, not with words.

Benjamin Piwko

Love does not mean there is no storm. Love means not letting go in the storm.

Benjamin Piwko

Getting loud is often not an attack, but a call for help that grew louder because the quiet one was never answered.

Benjamin Piwko

Every storm we weather together loses its power. It comes more quietly, passes faster and grows smaller. For fear was its only fuel. And whoever holds together is no longer afraid.

Benjamin Piwko

Others judge us, decide for us and speak about us, among themselves. And what about me? No one ever asked me. Nothing about us without us.

Benjamin Piwko